Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study

Abstract

Individuals diagnosed with drug-resistant epilepsy (DRE) and functional/dissociative seizures (FDS) face multiple social, economic, and psychological difficulties. Coping is central to adaptation and psychological well-being in chronic health conditions. This study explores and describes the coping strategies of patients with DRE and FDS from Buenos Aires, Argentina. To our knowledge, this is one of the first studies in Latin America to pursue this objective. A qualitative exploratory design was used for this study. Eight adult participants (four with DRE and four with FDS), aged 33–56 years, were recruited from the J.M. Ramos Mejía Hospital between 2021 and 2023. Data were collected through semi-structured interviews, based on the McGill Illness Narrative Interview, and analyzed using thematic analysis principles to capture patients’ experiences. Four coping strategies were identified from the analysis. First, both groups perceived social support from relatives and friends through emotional and practical assistance. Second, religiosity provided meaning, hope, and emotional relief through faith and religious practices. Third, participants reported seeking distraction as a way to distance themselves from intrusive negative thoughts. Finally, engaging in meaningful daily activities promoted autonomy and improved mood. This study offers a preliminary exploration and contributes to understanding the coping strategies of patients with DRE and FDS in Argentina. These strategies were perceived as valuable for managing the challenges and consequences of their seizures. Understanding these narratives enhances the professional–patient relationship and provides a more comprehensive perspective on living with seizures.