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dc.contributor.author
Kranenburg, Laura J.C.
dc.contributor.author
Reerds, Sam T.H.
dc.contributor.author
Cools, Martine
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Alderson, Julie
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Muscarella, Miriam
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Magrite, Ellie
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Kuiper, Martijn
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Abdelgaffar, Shereen
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Balsamo, Antonio
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Brauner, Raja
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Chanoine, Jean Pierre
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Deeb, Asma
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Fechner, Patricia
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German, Alina
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Holterhus, Paul Martin
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Juul, Anders
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Mendonca, Berenice B.
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Neville, Kristen
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Nordenstrom, Anna
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Oostdijk, Wilma
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Rey, Rodolfo Alberto
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Rutter, Meilan M.
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Shah, Nalini
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Luo, Xiaoping
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Grijpink, Kalinka
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Drop, Stenvert L.S.
dc.date.available
2018-12-06T15:43:18Z
dc.date.issued
2017-09
dc.identifier.citation
Kranenburg, Laura J.C.; Reerds, Sam T.H.; Cools, Martine; Alderson, Julie; Muscarella, Miriam; et al.; Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org Portal; Karger; Hormone Research in Paediatrics; 88; 2; 9-2017; 127-139
dc.identifier.issn
1663-2818
dc.identifier.uri
http://hdl.handle.net/11336/65974
dc.description.abstract
Background: Information sharing in chronic conditions such as disorders of/differences in sex development (DSD) is essential for a comprehensive understanding by parents and patients. We report on a qualitative analysis of communication skills of fellows undergoing training in paediatric endocrinology. Guidelines are created for the assessment of communication between health professionals and individuals with DSD and their parents. Methods: Paediatric endocrinology fellows worldwide were invited to study two interactive online cases (www.espe-elearning.org) and to describe a best practice communication with (i) the parents of a newborn with congenital adrenal hyperplasia and (ii) a young woman with 46,XY gonadal dysgenesis. The replies were analysed regarding completeness, quality, and evidence of empathy. Guidelines for structured assessment of responses were developed by 22 senior paediatric endocrinologists worldwide who assessed 10 selected replies. Consensus of assessors was established and the evaluation guidelines were created. Results: The replies of the fellows showed considerable variation in completeness, quality of wording, and evidence of empathy. Many relevant aspects of competent clinical communication were not mentioned; 15% (case 1) and 17% (case 2) of the replies were considered poor/insufficient. There was also marked variation between 17 senior experts in the application of the guidelines to assess communication skills. The guidelines were then adjusted to a 3-level assessment with empathy as a separate key item to better reflect the qualitative differences in the replies and for simplicity of use by evaluators. Conclusions: E-learning can play an important role in assessing communication skills. A practical tool is provided to assess how information is shared with patients with DSD and their families and should be refined by all stakeholders, notably interdisciplinary health professionals and patient representatives.
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application/pdf
dc.language.iso
eng
dc.publisher
Karger
dc.rights
info:eu-repo/semantics/openAccess
dc.rights.uri
https://creativecommons.org/licenses/by-nc-nd/2.5/ar/
dc.subject
Competency Assessment
dc.subject
Congenital Adrenal Hyperplasia
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Disorders of Sex Development
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E-Learning
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Online Learning
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Subspecialty Training
dc.subject.classification
Endocrinología y Metabolismo
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Medicina Clínica
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CIENCIAS MÉDICAS Y DE LA SALUD
dc.title
Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org Portal
dc.type
info:eu-repo/semantics/article
dc.type
info:ar-repo/semantics/artículo
dc.type
info:eu-repo/semantics/publishedVersion
dc.date.updated
2018-06-22T14:42:24Z
dc.identifier.eissn
1663-2826
dc.journal.volume
88
dc.journal.number
2
dc.journal.pagination
127-139
dc.journal.pais
Suiza
dc.journal.ciudad
Basilea
dc.description.fil
Fil: Kranenburg, Laura J.C.. Erasmus University Medical Center; Países Bajos
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Fil: Reerds, Sam T.H.. Erasmus University Medical Center; Países Bajos
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Fil: Cools, Martine. University of Ghent; Bélgica
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Fil: Alderson, Julie. NHS Foundation Trust. University Hospitals
Bristol; Reino Unido
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Fil: Muscarella, Miriam. University of California; Estados Unidos
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Fil: Magrite, Ellie. Ffounder And Trustee;
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Fil: Kuiper, Martijn. Erasmus University Medical Center;
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Fil: Abdelgaffar, Shereen. Cairo University; Egipto
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Fil: Balsamo, Antonio. Universidad de Bologna; Italia
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Fil: Brauner, Raja. Universite de Paris V; Francia
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Fil: Chanoine, Jean Pierre. British Columbia Children’s Hospital. Department of Paediatrics; Canadá
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Fil: Deeb, Asma. Mafraq Hospital; Emiratos Arabes Unidos
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Fil: Fechner, Patricia. University of Washington; Estados Unidos
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Fil: German, Alina. Technion - Israel Institute of Technology; Israel
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Fil: Holterhus, Paul Martin. Universitätsklinikum Schleswig-Holstein; Alemania. Christian-Albrechts-Universität zu Kiel; Alemania
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Fil: Juul, Anders. Universidad de Copenhagen; Dinamarca
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Fil: Mendonca, Berenice B.. Universidade de Sao Paulo; Brasil
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Fil: Neville, Kristen. Sydney Children's Hospital; Australia
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Fil: Nordenstrom, Anna. Karolinka Institutet; Suiza
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Fil: Oostdijk, Wilma. Leiden University; Países Bajos
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Fil: Rey, Rodolfo Alberto. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Parque Centenario. Centro de Investigaciones Endocrinológicas "Dr. César Bergada". Gobierno de la Ciudad de Buenos Aires. Centro de Investigaciones Endocrinológicas "Dr. César Bergada". Fundación de Endocrinología Infantil. Centro de Investigaciones Endocrinológicas "Dr. César Bergada"; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Niños "Ricardo Gutiérrez"; Argentina
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Fil: Rutter, Meilan M.. University of Cincinnati; Estados Unidos
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Fil: Shah, Nalini. Seth GS Medical College & KEM Hospital; India
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Fil: Luo, Xiaoping. Tongji Hospital; China
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Fil: Grijpink, Kalinka. Delft University of Technology; Países Bajos
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Fil: Drop, Stenvert L.S.. Erasmus University Medical Center; Países Bajos
dc.journal.title
Hormone Research in Paediatrics
dc.relation.alternativeid
info:eu-repo/semantics/altIdentifier/doi/http://dx.doi.org/10.1159/000475992
dc.relation.alternativeid
info:eu-repo/semantics/altIdentifier/url/https://www.karger.com/Article/FullText/475992
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