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dc.contributor.author
Ortega, Javiera
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dc.contributor.author
Vázquez, Natalia
dc.contributor.author
Amayra Caro, Imanol
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dc.date.available
2023-12-15T16:32:44Z
dc.date.issued
2023-03
dc.identifier.citation
Ortega, Javiera; Vázquez, Natalia; Amayra Caro, Imanol; Quality of Life of Latin-American People with Neuromuscular Disorders and Their Families During the COVID-19 Pandemic; Springer; Advances in Neurodevelopmental Disorders; 2023; 3-2023; 1-7
dc.identifier.issn
2366-7532
dc.identifier.uri
http://hdl.handle.net/11336/220495
dc.description.abstract
Objectives: The COVID-19 pandemic has affected the entire population, especially the population with chronic diseases. This study aimed to describe the quality of life of children and adults with neuromuscular diseases and their caregivers during the COVID-19 pandemic. Methods: A observational correlational study was conducted. Forty-seven participants, including adults with NMD and caregivers of children with NMD, took part in the study. The WHOQOL-BREF and PedsQL 4.0 GCS and FIM scales were used. Results: The PedsQL indicated a mean of 55.85 (SD = 22.05) for children, and a mean of 55.76 (SD = 16.72) for caregivers. Adults reported a mean of 67 (SD = 22.5) for their general perception of quality of life, and a M = 53 (SD = 28.25) for their perception on health. Conclusions: The results showed regular to low quality of life of all children, adults, and caregivers, mainly in the physical dimension for people with neuromuscular diseases, and in the concerns dimension for caregivers. These results warn about the physical and psychological vulnerability situation in which this population finds itself.
dc.format
application/pdf
dc.language.iso
eng
dc.publisher
Springer
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dc.rights
info:eu-repo/semantics/restrictedAccess
dc.rights.uri
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
dc.subject
COVID-19
dc.subject
FAMILY QUALITY OF LIFE
dc.subject
NEUROMUSCULAR DISEASES
dc.subject
QUALITY OF LIFE
dc.subject.classification
Psicología especial
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dc.subject.classification
Psicología
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dc.subject.classification
CIENCIAS SOCIALES
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dc.title
Quality of Life of Latin-American People with Neuromuscular Disorders and Their Families During the COVID-19 Pandemic
dc.type
info:eu-repo/semantics/article
dc.type
info:ar-repo/semantics/artículo
dc.type
info:eu-repo/semantics/publishedVersion
dc.date.updated
2023-12-14T12:51:42Z
dc.identifier.eissn
2366-7540
dc.journal.volume
2023
dc.journal.pagination
1-7
dc.journal.pais
Alemania
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dc.journal.ciudad
Berlín
dc.description.fil
Fil: Ortega, Javiera. Pontificia Universidad Católica Argentina "Santa María de los Buenos Aires". Facultad de Psicología y Psicopedagogía. Centro de Investigaciones en Psicología y Psicopedagogía; Argentina
dc.description.fil
Fil: Vázquez, Natalia. Universidad Austral. Facultad de Ciencias Biomédicas; Argentina. Fundación de Psicología Aplicada a Enfermedades Huérfanas; Argentina
dc.description.fil
Fil: Amayra Caro, Imanol. Universidad de Deusto. Facultad de Psicologia y Educacion. Neuroemotion.; España
dc.journal.title
Advances in Neurodevelopmental Disorders
dc.relation.alternativeid
info:eu-repo/semantics/altIdentifier/url/https://link.springer.com/10.1007/s41252-023-00328-3
dc.relation.alternativeid
info:eu-repo/semantics/altIdentifier/doi/http://dx.doi.org/10.1007/s41252-023-00328-3
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