Artículo
Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital
Descalzo, Juan Marcos; Frutos, Eliana Ludmila; Rebrij, Romina Astrid; Luna, Daniel Roberto
; Benítez, Sonia
![Icon](/themes/CONICETDigital/images/conicet.png)
Fecha de publicación:
06/2022
Editorial:
IOS Press
Revista:
Studies in Health Technology and Informatics
ISSN:
0926-9630
e-ISSN:
1879-8365
Idioma:
Inglés
Tipo de recurso:
Artículo publicado
Clasificación temática:
Resumen
The objective of this study was to investigate and analyze the most relevant aspects that influence the development and implementation of electronic informed consent for genetic studies. Interviews were conducted with experts in the area within our institution, the different informed consents available and the number of genetic studies requested in the last 5 years were analyzed. Professionals acknowledged the ethical dilemmas related to the genetic studies and the importance of having an electronic informed consent that not only provides the patient with the information necessary to understand the implications of the study, but also be flexible enough to adapt to the various genetic studies today. The development of informed consent is a challenge for health IT professionals, due to the complexity of the information it contains and the ethical implications it represents.
Palabras clave:
ELECTRONIC HEALTH RECORD
,
GENETIC TEST
,
INFORMED CONSENT
Archivos asociados
Licencia
Identificadores
Colecciones
Articulos (IMTIB)
Articulos de INSTITUTO DE MEDICINA TRASLACIONAL E INGENIERIA BIOMEDICA
Articulos de INSTITUTO DE MEDICINA TRASLACIONAL E INGENIERIA BIOMEDICA
Citación
Descalzo, Juan Marcos; Frutos, Eliana Ludmila; Rebrij, Romina Astrid; Luna, Daniel Roberto; Benítez, Sonia; Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital; IOS Press; Studies in Health Technology and Informatics; 290; 6-2022; 227-229
Compartir
Altmétricas