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dc.contributor.author
Semprino, Marcos
dc.contributor.author
Fasulo, Lorena
dc.contributor.author
Fortini, Sebastian
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Martorell Molina, Catalina Isabel
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González, Lara
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Ramos, Paola Alejandra
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Martínez, Carolina
dc.contributor.author
Caraballo, Roberto Horacio
dc.date.available
2022-10-06T15:19:01Z
dc.date.issued
2020-11
dc.identifier.citation
Semprino, Marcos; Fasulo, Lorena; Fortini, Sebastian; Martorell Molina, Catalina Isabel; González, Lara; et al.; Telemedicine, drug-resistant epilepsy, and ketogenic dietary therapies: a patient survey of a pediatric remote-care program during the COVID-19 pandemic; Elsevier; Epilepsy & Behavior (print); 112; 11-2020; 1-7
dc.identifier.issn
1525-5050
dc.identifier.uri
http://hdl.handle.net/11336/172247
dc.description.abstract
Objective: The purpose of this study was to assess parent satisfaction with the management of ketogenic diet therapies (KDTs) through telemedicine using WhatsApp as the main tool. Methods: Parent satisfaction was longitudinally evaluated through questionnaires. The survey was developed with Google Questionnaire forms and sent via WhatsApp. The questionnaire consisted of 13 items concerning the management of KDTs using telemedicine in the context of the coronavirus disease 2019 (COVID-19) pandemic. Our population of patients has limited financial resources and low levels of education. Given that many families did not have either computers or WIFI, or any other access to information or communication technology, WhatsApp was chosen as a tool as it was available on the cell phones of all families and the professionals. Results: Our survey showed that 96.3% of the parents were satisfied with the management of KDTs through telemedicine. The main benefits observed were the possibility of continuing treatment during the COVID-19 pandemic and the ease of accessing the professional team from the comfort of their home. Overall, 72.2% of the families would recommend using telemedicine for KDTs in any situation regardless of the pandemic. None of the families reported that they would recommend against treatment by telemedicine. The availability of a social support network (parents WhatsApp group) coordinated by professionals from the KDT team was considered to be useful by most respondents (90%). Conclusions: Our study suggests that management of children with DRE on KDTs through telemedicine is feasible, well accepted by the families, and probably as safe as conventional medicine. WhatsApp may be an interesting telemedicine tool to start and maintain KDTs.
dc.format
application/pdf
dc.language.iso
eng
dc.publisher
Elsevier
dc.rights
info:eu-repo/semantics/restrictedAccess
dc.rights.uri
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
dc.subject
DRUG-RESISTANT EPILEPSY
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KETOGENIC DIET
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TELEMEDICINE
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TELENEUROLOGY
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WHATSAPP
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COVID-19
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Neurología Clínica
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Medicina Clínica
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CIENCIAS MÉDICAS Y DE LA SALUD
dc.title
Telemedicine, drug-resistant epilepsy, and ketogenic dietary therapies: a patient survey of a pediatric remote-care program during the COVID-19 pandemic
dc.type
info:eu-repo/semantics/article
dc.type
info:ar-repo/semantics/artículo
dc.type
info:eu-repo/semantics/publishedVersion
dc.date.updated
2022-10-03T17:56:34Z
dc.journal.volume
112
dc.journal.pagination
1-7
dc.journal.pais
Países Bajos
dc.journal.ciudad
Amsterdam
dc.description.fil
Fil: Semprino, Marcos. Clínica San Lucas; Argentina
dc.description.fil
Fil: Fasulo, Lorena. Clínica San Lucas; Argentina
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Fil: Fortini, Sebastian. Provincia de Tucumán. Ministerio de Salud. Sistema Provincial de Salud. Hospital del Niño Jesús; Argentina
dc.description.fil
Fil: Martorell Molina, Catalina Isabel. Provincia de Tucumán. Ministerio de Salud. Sistema Provincial de Salud. Hospital del Niño Jesús; Argentina
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Fil: González, Lara. Provincia de Tucumán. Ministerio de Salud. Sistema Provincial de Salud. Hospital del Niño Jesús; Argentina
dc.description.fil
Fil: Ramos, Paola Alejandra. Provincia de Tucumán. Ministerio de Salud. Sistema Provincial de Salud. Hospital del Niño Jesús; Argentina
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Fil: Martínez, Carolina. Provincia de Tucumán. Ministerio de Salud. Sistema Provincial de Salud. Hospital del Niño Jesús; Argentina
dc.description.fil
Fil: Caraballo, Roberto Horacio. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital de Pediatría "Juan P. Garrahan"; Argentina
dc.journal.title
Epilepsy & Behavior (print)
dc.relation.alternativeid
info:eu-repo/semantics/altIdentifier/url/https://www.sciencedirect.com/science/article/pii/S1525505020306739
dc.relation.alternativeid
info:eu-repo/semantics/altIdentifier/doi/http://dx.doi.org/10.1016/j.yebeh.2020.107493
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