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dc.contributor.author
Roberti, Javier Eugenio
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Alonso, Juan Pedro
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Blas, Leandro
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May, Carl
dc.date.available
2022-08-23T11:12:46Z
dc.date.issued
2021-09
dc.identifier.citation
Roberti, Javier Eugenio; Alonso, Juan Pedro; Blas, Leandro; May, Carl; Kidney failure, status passage, and the transitional nature of living with the disease: A qualitative study in Argentina; Sage Publications Ltd; Health; 2021; 9-2021; 1-18
dc.identifier.issn
1363-4593
dc.identifier.uri
http://hdl.handle.net/11336/166289
dc.description.abstract
The span of kidney failure (KF) has been extended by advances in treatment. To elucidate the lived experiences of people with KF, we draw on Glaser and Strauss’s theory of status passage. Semi-structured interviews were conducted with 50 patients with KF and 14 health professionals, from two healthcare facilities in Buenos Aires, Argentina. The theory informed on the temporal dimensions of people’s passages and dimensions related to what actors know of this passage. We described the status passage as a sequence of transitions (starting dialysis, receiving a transplant, returning to dialysis) that have devastating effects on patient’s roles, and are accompanied with fear and experience of wasting time. Temporal aspects were crucial and planning was useless; indeed, timing of statuses was uncertain. With a transplant, certain roles and capacities could be regained. Some patients were not aware of the chronic nature of the disease and the ultimate reversibility of the transplant. Control over the passage was minimal because of the unpredictable prognosis of the disease but patients employed strategies to regain it. Control was even more limited for people who migrated to receive a treatment; whose lives were completely altered. Status passage theory signaled the overwhelming impact of the passage on all aspects of people’s lives, the uncertainty of the transitions, lack of control and awareness of essential aspects, and unexpected aspects of desirability, adding to our understanding of how people experience this disease and its treatments.
dc.format
application/pdf
dc.language.iso
eng
dc.publisher
Sage Publications Ltd
dc.rights
info:eu-repo/semantics/restrictedAccess
dc.rights.uri
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
dc.subject
CHRONIC ILLNESS AND DISABILITY
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SOCIOLOGY OF HEALTH IN DEVELOPING COUNTRIES
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THEORY
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Tópicos Sociales
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Sociología
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CIENCIAS SOCIALES
dc.title
Kidney failure, status passage, and the transitional nature of living with the disease: A qualitative study in Argentina
dc.type
info:eu-repo/semantics/article
dc.type
info:ar-repo/semantics/artículo
dc.type
info:eu-repo/semantics/publishedVersion
dc.date.updated
2022-08-18T15:55:16Z
dc.identifier.eissn
1461-7196
dc.journal.volume
2021
dc.journal.pagination
1-18
dc.journal.pais
Estados Unidos
dc.description.fil
Fil: Roberti, Javier Eugenio. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Parque Centenario. Centro de Investigaciones en Epidemiología y Salud Pública. Instituto de Efectividad Clínica y Sanitaria. Centro de Investigaciones en Epidemiología y Salud Pública; Argentina
dc.description.fil
Fil: Alonso, Juan Pedro. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Parque Centenario. Centro de Investigaciones en Epidemiología y Salud Pública. Instituto de Efectividad Clínica y Sanitaria. Centro de Investigaciones en Epidemiología y Salud Pública; Argentina
dc.description.fil
Fil: Blas, Leandro. Hospital Aleman; Argentina
dc.description.fil
Fil: May, Carl. London School of Hygiene and Tropical Medicine; Reino Unido
dc.journal.title
Health
dc.relation.alternativeid
info:eu-repo/semantics/altIdentifier/url/http://journals.sagepub.com/doi/10.1177/13634593211046842
dc.relation.alternativeid
info:eu-repo/semantics/altIdentifier/doi/http://dx.doi.org/10.1177/13634593211046842
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