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dc.contributor.author
Luxardo, Natalia
dc.contributor.author
Brage, Eugenia
dc.contributor.author
Alvarado, Cynthia
dc.date.available
2023-06-02T17:13:20Z
dc.date.issued
2012-11
dc.identifier.citation
Luxardo, Natalia; Brage, Eugenia; Alvarado, Cynthia; An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina; Ecancer; ecancermedicalscience; 6; 1; 11-2012; 1-10
dc.identifier.issn
1097-0142
dc.identifier.uri
http://hdl.handle.net/11336/199410
dc.description.abstract
The aim of the study was to describe the type of intervention provided by hospice staff in order to address the pragmatic, psycho-social, and spiritual needs of home-caregivers for patients in the last stage of cancer. The qualitative inquiry was carried out in real life contexts. The explicit demands that caregivers (n = 40) identified in the first interviews were: (1) helping to organize the care of the patient at home; (2) unspecific demands, with unclear or unrealistic purposes (e.g., curative treatment or a miracle expected to occur); (3) specific resources (such as formal caregivers to replace them), and (4) a place to leave the patient either for a temporary period (a respite for the family) or in a permanent way. The main issues discussed were the delays in the patients' referral to the hospice and the lack of time for long-term interventions; explicit focus is placed on the care by addressing the spiritual and emotional needs of caregivers, unlike in hospital settings where professionals avoid discussions of spiritual needs due to a lack of time, inadequate training and poor understanding of spirituality; hospices' interventions are based upon an ethos similar to the movement's original Christian spirit with emphasis placed on qualities of care such as love, charity, and compassion besides expertise and end-of-life competence, all while tolerating a sense of abandonment by health and social security systems following the patient's referral.
dc.format
application/pdf
dc.language.iso
eng
dc.publisher
Ecancer
dc.rights
info:eu-repo/semantics/openAccess
dc.rights.uri
https://creativecommons.org/licenses/by/2.5/ar/
dc.subject
END-OF-LIFE CARE
dc.subject
FAMILY CAREGIVER
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HOSPICE SUPPORT
dc.subject.classification
Ciencias Sociales Interdisciplinarias
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Otras Ciencias Sociales
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CIENCIAS SOCIALES
dc.title
An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina
dc.type
info:eu-repo/semantics/article
dc.type
info:ar-repo/semantics/artículo
dc.type
info:eu-repo/semantics/publishedVersion
dc.date.updated
2023-05-24T16:56:23Z
dc.identifier.eissn
1754-6605
dc.journal.volume
6
dc.journal.number
1
dc.journal.pagination
1-10
dc.journal.pais
Reino Unido
dc.journal.ciudad
Londres
dc.description.fil
Fil: Luxardo, Natalia. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires; Argentina
dc.description.fil
Fil: Brage, Eugenia. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires; Argentina
dc.description.fil
Fil: Alvarado, Cynthia. Hospital San Camilo; Argentina
dc.journal.title
ecancermedicalscience
dc.relation.alternativeid
info:eu-repo/semantics/altIdentifier/url/https://ecancer.org/es/journal/article/281-an-examination-of-advanced-cancer-caregivers-support-provided-by-staff-interventions-at-hospices-in-argentina
dc.relation.alternativeid
info:eu-repo/semantics/altIdentifier/doi/https://doi.org/10.3332/ecancer.2012.281
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